Parenting Through A Flare (Tips I Use When Flaring)

Parenting is hard, don’t let anyone tell you any different. As parents, we want to do our absolute best for our kids. We are plagued with doubt as to whether we are doing the right thing! It can feel like an uphill battle that you are never thanked for, but I wouldn’t change it for the world. Bearing in mind how tough parenting is for someone who doesn’t have a chronic illness, imagine how hard and challenging it is for someone who does. Flares happen anytime, anywhere occasionally without warning, which are physically and mentally draining. For me when a …

Shining The Spotlight on Chronic Illness & Disability Q&A My Story

Shining the spotlight on chronic illness and disability is a series I created to give others like myself, who live with chronic illness or disability an arena to get their voices heard.  To show the world exactly what it is like to walk a mile in our shoes.  The series officially started at the beginning of November with a number of participants submitting their answers and more to come.  I thought that I would take the time to answer the questions and let me retell my story.  Introduce yourself and tell us a bit about you?   Hey. I’m Nicola. …

My First Touch & Feel – Book Review

Reading is a big part of the bedtime routine in our house. David reads to Alex every night before bed. We want to encourage Alex to enjoy reading as much as his daddy does. I wasn’t a big reader growing up because I struggled with the size of print, if I had known then that there was aids to help me I might have enjoyed reading and getting lost in the story. I want that for Alex. He will pick up one of the many books he has a look at the pictures which is a good start. To encourage …

When Chronic Illness & Mental Illness Gang Up On You

If you’ve been around these parts for a while you’ll know that I suffer from both chronic illness and mental illness. Although you wouldn’t be wrong to think that my mental illnesses of depression and anxiety are part in parcel with the chronic illness, you’d be both right and wrong. Although I’ve been plagued with depression most of my adult life, being diagnosed with chronic illnesses has made living with depression a little more difficult. It’s hard not to let the symptoms of my illnesses gang up on me and make me feel worthless and a terrible mother. A while …

When My Illness Affects My Child

Having lived with fibromyalgia for several years I am used to the disappointment that comes when I’ve made plans and have to cancel because I’m either too exhausted, too sore or have concentration issues. What I am not used to is the way it affects my child’s life. His activities and chances to meet and play with other kids his age. Take today for example we go to gymnastics on Wednesday mornings he gets to spend time with his big cousin, play on the spring floor, the apparatus and the trampoline. But because I am in so much pain and …