Parenting Through A Flare (Tips I Use When Flaring)

Parenting is hard, don’t let anyone tell you any different. As parents, we want to do our absolute best for our kids. We are plagued with doubt as to whether we are doing the right thing! It can feel like an uphill battle that you are never thanked for, but I wouldn’t change it for the world. Bearing in mind how tough parenting is for someone who doesn’t have a chronic illness, imagine how hard and challenging it is for someone who does. Flares happen anytime, anywhere occasionally without warning, which are physically and mentally draining. For me when a …

New Month, Same Old Same, But Plans Are Afoot

It feels like 2019 is running away from us. I swear it feels like we were just celebrating the new year, looking forward to new adventures, setting goals and making plans. Next think we know it’s half the year has gone and we (meaning me) aren’t any further forward in the goals I’d set myself or following through on the plans I’d hoped to make. Please tell me I’m not the only one?? Hello June – My Plans and Hopes This month I’m hoping to get back into posting more on here and my social media. The last few months …

How A Bad Doctors Appointment Can Put You Off

Finding a doctor who is understanding about your chronic condition can be a struggle.  The number of GP’s I’ve seen or stories I’ve heard from others about doctors not listening or helping is shocking!  I wrote previously about My Chronic Illness and GP’s  Where I spoke about the lack of support I was receiving by my doctor.  Shortly after writing that piece I moved practice and found a doctor who I felt got my condition and was helpful.  That is until one day, they don’t seem to be as understanding as you first thought.  They make you feel like you’re …

This Flare Was Inevitable

With everything that has been going on lately, it’s no surprise that I am smack bang in the middle of a fibromyalgia flare. The stresses of being flooded, temporarily moving out and dealing with an overzealous climbing toddler has taken its toll. If you’re not sure what I’m talking about check out my last post for a life update. Over the past month or so I’ve been pushing myself to the limit everyday. I might not have been busting myself with chores or going for walks but stress uses up energy and when your energy levels aren’t that high to …

Why Fibromyalgia Awareness Day Is Important.

Today 12th May marks Fibromyalgia Awareness Day, a date that has been used for several years to help raise awareness to the condition that an estimated 800.000 people in the UK live with. It’s important that we talk, post and share about fibromyalgia as we need more and more people to know about this condition. A condition that some medical practitioners don’t believe in. A condition that can cause excruciating pain and debilitating fatigue. A condition that so many people battle against daily. It may not be life threatening but it is still a battle so many suffer alone and …

How Chronic Illness Has Changed Me & Why I’m Ok With It, Kind Of

Finding out i had a chronic illness, was a huge adjustment to me. My life changed almost overnight. I went from a fun loving girl who enjoyed nights out with friends, days out into the city with David to a hermit like version of myself who wouldn’t go on day trips because I didn’t know how long it would take me to get sore and tired and want to come. I stopped going out with friends for similar reasons. It has taken some time to come to terms with my life changing because of illness and I’m okay with it, …

When My Illness Affects Alex

Having lived with fibromyalgia for several years I am used to the disappointment that comes when I’ve made plans and have to cancel because I’m either too exhausted, too sore or have concentration issues. What I am not used to is the way it affects Alex’s life. His activities and chances to meet and play with other kids his age. Take today for example we go to gymnastics on Wednesday mornings Alex gets to spend time with his big cousin, play on the spring floor, the apparatus and the trampoline. But because I am in so much pain and can …

Positive GP Appointment 

For many people the thought of a GP appointment fills them with dread and anxiety, the fear that they will be judged for their weight or lifestyle choices, prevents many from seeking help from a GP when they are unwell.  I speak from experience.  Until very recently I had never had a positive GP appointment, I always left feeling that I had wasted their time ad resources, that they never really listened to what I was saying, that they were more interested in seeing patients as quickly as possible and getting them out the door.  I have previously written about …

My Chronic Illness And GPs

“The cruelest symptoms of our illness, is disbelief by medical personnel”. This quote by Mary Carlson is a perfect explanation of my own feelings with my illness and doctors. Ever since I started developing symptoms of my chronic illness I’ve had the feeling that many doctors didn’t believe me, leaving me to feel that what I was experiencing was all in my bed. I literally had to beg to be referred to a consultant twice and it was the second referral that finally for my diagnosis. Fast forward 4 years a confirmed diagnosis of fibromyalgia and hyper mobility syndrome and …

Where My Heads At – Life Update 

All week I’ve been trying to write this post about how my latest fibromyalgia flare has affected me mentally.  But I keep stumbling with getting the words out!  Every time I sit down to write my mind goes blank, maybe I’m preoccupied with other issues that are going on at the moment, or maybe I’m not ready to talk about my mental health during a flare. Its hard to remain positive when your experiencing pain and exhaustion that can only be described as excruciating, where nothing takes the edge off, you cannot get out of bed unaided and cannot care …

Bus Drivers!!!

Dearest First Bus drivers’ (yes plural)  I am a bus pass holder for visual impairment and have a toddler in a pushchair and I just want to take the time to say thank you.  Thank you for waiting until I was seated before pulling away. Making sure that my pushchair was securely braked and I didn’t bump into the pole meaning I wouldn’t end up with a bruise and sore arm thanks to my chronic condition fibromyalgia…………………..oh wait. That didn’t happen, did it?  No you both were complete wankers and pulled away before I was sitting down. I struggled to …