Parenting Through A Flare (Tips I Use When Flaring)

Parenting is hard, don’t let anyone tell you any different. As parents, we want to do our absolute best for our kids. We are plagued with doubt as to whether we are doing the right thing! It can feel like an uphill battle that you are never thanked for, but I wouldn’t change it for the world. Bearing in mind how tough parenting is for someone who doesn’t have a chronic illness, imagine how hard and challenging it is for someone who does. Flares happen anytime, anywhere occasionally without warning, which are physically and mentally draining. For me when a …

How A Bad Doctors Appointment Can Put You Off

Finding a doctor who is understanding about your chronic condition can be a struggle.  The number of GP’s I’ve seen or stories I’ve heard from others about doctors not listening or helping is shocking!  I wrote previously about My Chronic Illness and GP’s  Where I spoke about the lack of support I was receiving by my doctor.  Shortly after writing that piece I moved practice and found a doctor who I felt got my condition and was helpful.  That is until one day, they don’t seem to be as understanding as you first thought.  They make you feel like you’re …

The Changing Seasons (How To Cope With Chronic Illness In The Colder Months)

As the seasons change, the sometimes drastic shifts in weather conditions can have a huge impact on people, (especially those with chronic illnesses). Which can affect them mentally, with conditions such as Seasonal Affective Disorder (SAD) to physically with the rapid weather changes causing differing degrees of widespread pain and headaches. Many patients with chronic illnesses such as Hyperthyroidism. Multiple Sclerosis and Fibromyalgia can find it hard to regulate their own body temperature meaning that the changing seasons for them is more challenging than for most. As they are unsure from day to day how their body will react to …

How Chronic Illness Has Changed Me & Why I’m Ok With It, Kind Of

Finding out i had a chronic illness, was a huge adjustment to me. My life changed almost overnight. I went from a fun loving girl who enjoyed nights out with friends, days out into the city with David to a hermit like version of myself who wouldn’t go on day trips because I didn’t know how long it would take me to get sore and tired and want to come. I stopped going out with friends for similar reasons. It has taken some time to come to terms with my life changing because of illness and I’m okay with it, …

When My Illness Affects My Child

Having lived with fibromyalgia for several years I am used to the disappointment that comes when I’ve made plans and have to cancel because I’m either too exhausted, too sore or have concentration issues. What I am not used to is the way it affects my child’s life. His activities and chances to meet and play with other kids his age. Take today for example we go to gymnastics on Wednesday mornings he gets to spend time with his big cousin, play on the spring floor, the apparatus and the trampoline. But because I am in so much pain and …

Positive GP Appointment 

For many people the thought of a GP appointment fills them with dread and anxiety, the fear that they will be judged for their weight or lifestyle choices, prevents many from seeking help from a GP when they are unwell.  I speak from experience.  Until very recently I had never had a positive GP appointment, I always left feeling that I had wasted their time ad resources, that they never really listened to what I was saying, that they were more interested in seeing patients as quickly as possible and getting them out the door.  I have previously written about …

My Chronic Illness And GPs

“The cruelest symptoms of our illness, is disbelief by medical personnel”. This quote by Mary Carlson is a perfect explanation of my own feelings with my illness and doctors. Ever since I started developing symptoms of my chronic illness I’ve had the feeling that many doctors didn’t believe me, leaving me to feel that what I was experiencing was all in my bed. I literally had to beg to be referred to a consultant twice and it was the second referral that finally for my diagnosis. Fast forward 4 years a confirmed diagnosis of fibromyalgia and hyper mobility syndrome and …

Invisible Illness – My Fibromyalgia & Chronic Fatigue Story

For over 4 years I have been living with the confirmed diagnosis of Fibromyalgia, Hyper-mobility Syndrome, and Chronic Fatigue Syndrome. All of which are considered invisible illnesses. Due to the fact the the symptoms are not visible to others. Like many who live with invisible illness it took several years for doctors to listen to and believe me. This is my story. The Long Road To Diagnosis My fibromyalgia symptoms first began in 2009. After an emergency trip to the hospital that eventually resulted in an operation on my right eye. I began to experience wide spread pain, tender points …