Chronic Illness & The Grieving Process

Coming to terms with a diagnosis of a long term condition can be difficult. Our bodies and minds are attempting to adjust to the new situation we find ourselves in. We feel a loss for our lives prior to illness. In a way we might approach the loss like we would if we were grieving the loss of a loved one or relationship. Speaking from my own personal experience with fibromyalgia I went through and continue to go through the various stages of grief. The concept of grieving for your life before illness has been written about multiple times. Lisa Sniderman touches on it in her book A Light In the Darkness, as well as other chronic illness writers and […]

Shining The Spotlight On Chronic Illness & Disabilities Q&A With Lynley

Hello and welcome back to nicolajogston.com. Today I am sharing Lynley if Top Lady Talks Q&A for The Shining The Spotlight Series. Introduce yourself and tell us a bit about you?  Hi! My name is Lynley Gregory and I’m a 51 year old retired teacher. Chronic illness(es)/disabilities I have? I became disabled 4 years ago following a spontaneous Sacral spinal fracture and subsequent nerve damage. This left me with chronic pain and weakness in my left hip and leg and I now use crutches and an electric powerchair to mobilise. After the fracture, we found out that I had severe osteoporosis and it was this that had caused the spontaneous fracture.  My symptoms/condition began? It all started during lesson 5 […]

Shining The Spotlight on Chronic Illness & Disability Q&A With Jaime

Hello and welcome to another instalment of Shining The Spotlight series. Todays q&a is brought. to you by Jaime of I Told You I Was Sick Introduce yourself and tell us a bit about you?  Hello. I’m Jaime. I’m an autistic woman who received a late diagnosis of this developmental condition in 2015. I’m a content creator who specializes in making content around chronic illness, natural treatments, and life on the autism spectrum.  Chronic illness(es)/disabilities I have? I’m autistic, but I don’t consider it a disability, although it does cause a fair amount of issues living in a neurotypical (non-autistic) world. Like many on the autism spectrum, I see it as a different operating system, like the difference between a […]

Shining The Spotlight on Chronic Illness & Disability Q&A My Story

Shining the spotlight on chronic illness and disability is a series I created to give others like myself, who live with chronic illness or disability an arena to get their voices heard.  To show the world exactly what it is like to walk a mile in our shoes.  The series officially started at the beginning of November with a number of participants submitting their answers and more to come.  I thought that I would take the time to answer the questions and let me retell my story.  Introduce yourself and tell us a bit about you?   Hey. I’m Nicola. A blogger, mother, wife and dog mum. We live in central Scotland which means we have access to so many […]

Shining The Spotlight on Chronic Illness & Disability Q&A With Amanda

Hello and welcome to another instalment of Shining The Spotlight. A series where I give others with chronic illness and disabilities the platform to talk about their illness or disability to help raise the awareness of their condition or disability.   Introduce yourself and tell us a bit about you? Hi, my name is Amanda Gene. I’m 30 years old, and I have a disability and mental illness blog.  Chronic illness(es)/disabilities I have? I have a visual impairment called Nystagmus, which is where my eyes move continuously. I have night blindness. I also have Cerebral Palsy and Dyslexia. My symptoms/condition began? I was born 12 weeks early at 28 weeks gestation and I weighed 1 pound 5 ounces and was […]

Shining The Spotlight On Chronic Illness & Disability Q&A with Anonymous

Hello and welcome to another instalment of my Shining The Spotlight series.  Today’s Q&A is with one of my friends who wishes to remain anonymous.  This is her story. Introduce yourself and tell us a bit about you?  I am a 35 year old female homemaker with a ten year old, loving partner and dogs.  Chronic illness(es)/disabilities I have? I have Crohns disease which at first doctors thought was coeliac disease. I have problems with joints swelling which they think is  rheumatoid arthritis. I also have anxiety issues. My symptoms/condition began?  I was ill after a holiday to Majorca in 2004. I had really bad food poisoning and never got better. Running to the toilet, losing weight, constant stomach pain. […]

Shining The Spotlight on Chronic Illness & Disability Q&A With Jenny

Hello and welcome to the second instalment of Shining The Spotlight on Chronic Illness & Disability.  A series of posts where guest bloggers answer questions about their illness or disability.  In the hope that we can shine a light on these illnesses and disabilities to raise awareness and let people see that because they are mostly invisible illnesses & disabilities, that they are in fact real. Today’s Q&A is from Jenny.  Jenny blogs over at Tripping Through Treacle.   Introduce yourself and tell us a bit about you?   Hi!  I’m Jenny and am 40 years old.  I am married with two kids, a boy and a girl and live in the East of England.  Until recently, I worked as […]

Shining The Spotlight on Chronic Illness & Disability Q&A With Ashley

Following on from the guest post by the lovely Pamela. I was inspired to shine the spotlight on as many illnesses and spoonies as I can. I want to keep the conversation of chronic illness and disability going and for everyone to get their story heard. I compiled a list of questions that I thought would give people the chance to talk about their illness/disability and how their life is affected by it. Three people might all have fibromyalgia for example but all three of them might have a different list of symptoms and deal with it differently. The first of this Shining A Spotlight On Chronic Illness Series is brought to you by Ashley. I’ll stop rambling on and […]

The Changing Seasons – A Chronic Illness Survival Guide

The weather this summer has been glorious but it has been far too hot for some people, myself included.  Thankfully we are coming to the end of season.   I wanted to share some of the things I’ve learned this year to help cope the heat and chronic illness.  As well as sharing tips on dealing with the upcoming changes in seasons. What This Summer Taught Me Hot weather and fibromyalgia don’t make the best of friends.  They get on fine but don’t expect them to be talking after a few months of intense heat. The heat can cause symptoms to flare  During the heatwave that gripped the UK in July I learned a lot about how to cope with […]

This Flare Was Inevitable

With everything that has been going on lately, it’s no surprise that I am smack bang in the middle of a fibromyalgia flare. The stresses of being flooded, temporarily moving out and dealing with an overzealous climbing toddler has taken its toll. If you’re not sure what I’m talking about check out my last post for a life update. Over the past month or so I’ve been pushing myself to the limit everyday. I might not have been busting myself with chores or going for walks but stress uses up energy and when your energy levels aren’t that high to begin with, you can feel drained very quickly. Living at my parents was good for both me and Alex as […]