Hello and welcome back to my Shining The Spotlight On Chronic Illness & Disabilities series. Today’s interview is with Barbara Moore of Catch Your Breath 60.
Introduce Yourself And Tell Us A bit About You?
My name is Barbara Moore. I am a former Business Instructor at a career college. My background is in business and manufacturing finances
Chronic illness(es)/disabilities I have?
I was diagnosed with COPD in 2015. I have had 2 Sudden Cardiac Arrests at the onset of my COPD diagnosis. I have heart issues that remain undiagnosed at this time
My symptoms/condition began?
About 10 years before diagnosis and slowly became progressively worse.
My diagnosis process was?
My diagnosis was swift because I had a Sudden Cardiac Arrest. I was delivered to hospital, vital signs absent. After being revived, I was in a coma for 5 days and in ICU for 28 days. Six months later I had my second Cardiac Arrest and had an ICD implanted, these episodes are believed to be due to COPD.
The hardest part of living with my illness/disabilities is?
- Shortness of breath
- Chronic Cough
- Mucus production
- Tightness in the chest
- Increased Chest infections
- Increased heart rate
- Unable to complete small tasks without having to rest in between, either sitting or leaning against a wall or railing.
- I have no independence
People assume that?
I deserve this disease because I smoked, was a preemie, lived in an industrial city, had family members that smoked.
A typical day for me involves?
- Recovering from sleeping,
- Taking medications
- Catching my breath,
- Eating well and
- Getting ready for bed.
The one thing I cannot live without is?
- My medications
- My BiPap
- My supplemental oxygen
- Family support
Being ill/disabled has taught me?
Compassion for others because you never know what others are experiencing. To use time to its best advantage because you never know how much you have left or what your quality of life will be
What advice would I give someone recently diagnosed?
Listen carefully to doctors’ advice, create a journal and write down how you feel on a daily basis. Be proactive about your illness and do as much as you can to take control of it. Exercise as much as you can and keep your body moving
My support system is?
- my family,
- my online support groups and
- my in person peer support groups
If I had
one day symptom/ disability free I would?
I would run and play my grandson all day. I would do normal things like going for a walk. I would go for groceries, and then cook the food and clean the kitchen after.
One positive of having a chronic illness/disability is?
I have learned about self-care. I take better care of me and make time for myself every day.
The spoonie/disability community has been?
The spoonie community is my life saver. They have taught me what is normal and how to care for myself with makes excuses why I am this way. They taught me to pace and breathe and take it so but to never quit.
If you are interested in taking part in a future Shining The Spotlight post drop me an email at email@example.com or firstname.lastname@example.org.