Shining The Spotlight On Chronic Illness & Disabilities Q&A With Liz

Welcome back to another instalment in the Shining The Spotlight series. A series I created for people like myself who are living with chronic illness or disabilities, giving them a platform to tell their story. Todays post is brought to you by Liz from Despite Pain. Introduce yourself and tell us a bit about you? My name is Liz and write the blog. I’ve lived with chronic pain all of my adult life. I’m married and live on a sheep farm in the hills of the Scottish Borders. I had to take early retirement from work when I was 28. I am now 52, feeling like 92 some days, older on other days. But I try to get through […]

Chronic Illness & The Grieving Process

Coming to terms with a diagnosis of a long term condition can be difficult. Our bodies and minds are attempting to adjust to the new situation we find ourselves in. We feel a loss for our lives prior to illness. In a way we might approach the loss like we would if we were grieving the loss of a loved one or relationship. Speaking from my own personal experience with fibromyalgia I went through and continue to go through the various stages of grief. The concept of grieving for your life before illness has been written about multiple times. Lisa Sniderman touches on it in her book A Light In the Darkness, as well as other chronic illness writers and […]

Shining The Spotlight On Chronic Illness & Disabilities Q&A With Lynley

Hello and welcome back to Today I am sharing Lynley if Top Lady Talks Q&A for The Shining The Spotlight Series. Introduce yourself and tell us a bit about you?  Hi! My name is Lynley Gregory and I’m a 51 year old retired teacher. Chronic illness(es)/disabilities I have? I became disabled 4 years ago following a spontaneous Sacral spinal fracture and subsequent nerve damage. This left me with chronic pain and weakness in my left hip and leg and I now use crutches and an electric powerchair to mobilise. After the fracture, we found out that I had severe osteoporosis and it was this that had caused the spontaneous fracture.  My symptoms/condition began? It all started during lesson 5 […]

February 2019 Decluttering Challenge

Living in a small 2 bedroom flat means that our options for storage is limited. We have to be creative with our storage solutions as well as what we can keep a hold of. Ideally I would have liked to start a decluttering challenge in January but with my chronic illness, getting back to a routine with nursery and life getting in the way I wasn’t able to start a purge of the house. Now that February is approaching I’m hoping to get a started, declutter and reorganise. Let’s Get Decluttering!! To make it less of a chore I looked on Pinterest for inspiration for what to and where to start decluttering. (I have a board for decluttering if you […]

Courage – My Word Of The Year

The concept of choosing a word or mantra of the year is fairly new to me. However in the world of bullet journalling and goal setting. Word of the year seems to be very popular. I found this article Word Of The Year Ideas For 2019 by The Goal Chaser very useful when it came to choosing my word and for understanding the concept behind focusing on one specific word to help a person achieve their goals. After some deliberation I decided my word of 2019 is courage. Some Words Stood Out. As I was reading through the article on The Goal Chaser, I had a few ideas of words that I might want to use, however I sat and […]

A Typical Morning In Our House

Mornings have never been my favourite time of the day. I envy the people who wake up bright eyed and bushy tailed, ready to take on the day. I never wake up feeling rested, paired with morning stiffness I can only describe as feeling like rigor mortis has began to set in. Getting started for the day is tough. Here’s how a typical morning in our house goes. Our very own human alarm clock Any family with young children know that the concept of a long lie is lost on them, it is in our house anyway. Normally the Alex will wake up anytime between 6:30 to 7am. He’s ready to get the day started, whereas my brain and body […]

Shining The Spotlight on Chronic Illness & Disability Q&A My Story

Shining the spotlight on chronic illness and disability is a series I created to give others like myself, who live with chronic illness or disability an arena to get their voices heard.  To show the world exactly what it is like to walk a mile in our shoes.  The series officially started at the beginning of November with a number of participants submitting their answers and more to come.  I thought that I would take the time to answer the questions and let me retell my story.  Introduce yourself and tell us a bit about you?   Hey. I’m Nicola. A blogger, mother, wife and dog mum. We live in central Scotland which means we have access to so many […]

Shining The Spotlight on Chronic Illness & Disability Q&A With Amanda

Hello and welcome to another instalment of Shining The Spotlight. A series where I give others with chronic illness and disabilities the platform to talk about their illness or disability to help raise the awareness of their condition or disability.   Introduce yourself and tell us a bit about you? Hi, my name is Amanda Gene. I’m 30 years old, and I have a disability and mental illness blog.  Chronic illness(es)/disabilities I have? I have a visual impairment called Nystagmus, which is where my eyes move continuously. I have night blindness. I also have Cerebral Palsy and Dyslexia. My symptoms/condition began? I was born 12 weeks early at 28 weeks gestation and I weighed 1 pound 5 ounces and was […]

2019 A New Year, New Adventures and Challenges Lie Ahead

We are only a few days into the new year! My brain still thinks its 2018 not 19. When my brain eventually catches up with the rest of the world. it will realise that we have a whole new year of adventures and challenges are ahead of us. When I was looking towards the new year and the new goals I wanted to set for myself. I never expected to be spending it in the midst of a really bad pain flare. I knew my new year would be starting with my dancing the night away, taking shots with pals but I’d hoped that I would be able to stay up for the bells and have a nice New Year’s […]

Shining The Spotlight On Chronic Illness & Disability Q&A with Anonymous

Hello and welcome to another instalment of my Shining The Spotlight series.  Today’s Q&A is with one of my friends who wishes to remain anonymous.  This is her story. Introduce yourself and tell us a bit about you?  I am a 35 year old female homemaker with a ten year old, loving partner and dogs.  Chronic illness(es)/disabilities I have? I have Crohns disease which at first doctors thought was coeliac disease. I have problems with joints swelling which they think is  rheumatoid arthritis. I also have anxiety issues. My symptoms/condition began?  I was ill after a holiday to Majorca in 2004. I had really bad food poisoning and never got better. Running to the toilet, losing weight, constant stomach pain. […]