You Behind The Illness (Tag)

I’ve spoken in the past about my chronic illness, touching on how it has changed my life for almost a decade (Has it really been that long?)  Although sometimes I don’t feel like myself anymore, deep down I am still the same person I was back then. Yes there may be homes when I feel defeated, and seem close to giving up on my hopes and dreams. Those dreams however are still there lingering in the background.  When Natalie of Surviving Lifes Hurdles tagged me in the You Behind The Illness tag, I was excited to take part in the …

How Chronic Illness Has Changed Me & Why I’m Ok With It, Kind Of

Finding out i had a chronic illness, was a huge adjustment to me. My life changed almost overnight. I went from a fun loving girl who enjoyed nights out with friends, days out into the city with David to a hermit like version of myself who wouldn’t go on day trips because I didn’t know how long it would take me to get sore and tired and want to come. I stopped going out with friends for similar reasons. It has taken some time to come to terms with my life changing because of illness and I’m okay with it, …

When My Illness Affects My Child

Having lived with fibromyalgia for several years I am used to the disappointment that comes when I’ve made plans and have to cancel because I’m either too exhausted, too sore or have concentration issues. What I am not used to is the way it affects my child’s life. His activities and chances to meet and play with other kids his age. Take today for example we go to gymnastics on Wednesday mornings he gets to spend time with his big cousin, play on the spring floor, the apparatus and the trampoline. But because I am in so much pain and …

Costochondritis – How It Really Feels. 

If you're an avid reader of this site, it is no secret that I have a few chronic conditions that have plagued me for several years.  I have spoken several times about my various illnesses which you can read about in My Chronic Illness & My Story.  When I mention one illness in particular many people have never heard of it, they don't know what costochondritis is or what it really feels like when you are experiencing what can only be described as a debilitating pain that feels like you could possibly be having a heart attack. What is costochondritis?  Basically …

Positive GP Appointment 

For many people the thought of a GP appointment fills them with dread and anxiety, the fear that they will be judged for their weight or lifestyle choices, prevents many from seeking help from a GP when they are unwell.  I speak from experience.  Until very recently I had never had a positive GP appointment, I always left feeling that I had wasted their time ad resources, that they never really listened to what I was saying, that they were more interested in seeing patients as quickly as possible and getting them out the door.  I have previously written about …

Fat Girl Walks Into A Gym

It sounds like the start of a joke but it’s not!  I am said fat girl and yesterday I walked into a gym for the first time. (Technically the second but the last one doesn’t count as I didn’t use any of the equipment.) And it wasn’t as nearly as intimidating as I thought it could possibly be.  I was encouraged by my GP to join a gym under a scheme called Active Forth which is run by Falkirk Community Trust. The scheme helps people with many conditions such as fibromyalgia, arthritis, CFS, anxiety and depression to become more active …

My Chronic Illness And GPs

“The cruelest symptoms of our illness, is disbelief by medical personnel”. This quote by Mary Carlson is a perfect explanation of my own feelings with my illness and doctors. Ever since I started developing symptoms of my chronic illness I’ve had the feeling that many doctors didn’t believe me, leaving me to feel that what I was experiencing was all in my bed. I literally had to beg to be referred to a consultant twice and it was the second referral that finally for my diagnosis. Fast forward 4 years a confirmed diagnosis of fibromyalgia and hyper mobility syndrome and …

Invisible Illness – My Fibromyalgia & Chronic Fatigue Story

For over 4 years I have been living with the confirmed diagnosis of Fibromyalgia, Hyper-mobility Syndrome, and Chronic Fatigue Syndrome. All of which are considered invisible illnesses. Due to the fact the the symptoms are not visible to others. Like many who live with invisible illness it took several years for doctors to listen to and believe me. This is my story. The Long Road To Diagnosis My fibromyalgia symptoms first began in 2009. After an emergency trip to the hospital that eventually resulted in an operation on my right eye. I began to experience wide spread pain, tender points …