Shining the Spotlight on Chronic Illness & Disability Q&A with Kaye

Hello and welcome to the third instalment of Shining the Spotlight on Chronic Illness and disability. Today Q&A is brought to you by Kaye.  If you’ve missed any of the previous posts they are linked above.   Introduce yourself and tell us a bit about you? I’m a dual national, UK Aussie. I came over (on a two year secondment LOL) almost 20 years ago with my husband and 5 year old son, leaving family and friends behind, but trying to keep in touch as direct family members dwindle. I want my son – now 25, to know his UK cousins and aunts and uncles. I was a primary school teacher for 20 years and am now a writer. Chronic […]

Shining The Spotlight on Chronic Illness & Disability Q&A With Jenny

Hello and welcome to the second instalment of Shining The Spotlight on Chronic Illness & Disability.  A series of posts where guest bloggers answer questions about their illness or disability.  In the hope that we can shine a light on these illnesses and disabilities to raise awareness and let people see that because they are mostly invisible illnesses & disabilities, that they are in fact real. Today’s Q&A is from Jenny.  Jenny blogs over at Tripping Through Treacle.   Introduce yourself and tell us a bit about you?   Hi!  I’m Jenny and am 40 years old.  I am married with two kids, a boy and a girl and live in the East of England.  Until recently, I worked as […]

Shining The Spotlight on Chronic Illness & Disability Q&A With Ashley

Following on from the guest post by the lovely Pamela. I was inspired to shine the spotlight on as many illnesses and spoonies as I can. I want to keep the conversation of chronic illness and disability going and for everyone to get their story heard. I compiled a list of questions that I thought would give people the chance to talk about their illness/disability and how their life is affected by it. Three people might all have fibromyalgia for example but all three of them might have a different list of symptoms and deal with it differently. The first of this Shining A Spotlight On Chronic Illness Series is brought to you by Ashley. I’ll stop rambling on and […]

What I Carry With Me To Help Manage My Chronic Pain – Guest Post – Blogtober 2018 – Day 27

Hello and welcome to day 27 of Blogtober.  Todays post is a guest post from the amazing Ali of Notebooks and Glasses.  Ali is sharing what she carries to help manage her chronic pain.   * * * I’m delighted to be featuring as a guest blogger for nicolajogston.com. Nicola and I met through our blogs and we both suffer from chronic pain. I write about my life with chronic pain at Notebooks and Glasses. Although I have reluctantly had to give up on my Blogtober challenge this year, I still wanted to write and submit my post for Nicola’s blog. Thank you for having me – and congratulations on your own Blogtober challenge. I am really enjoying reading your […]

How A Bad Doctors Appointment Can Put You Off

Finding a doctor who is understanding about your chronic condition can be a struggle.  The number of GP’s I’ve seen or stories I’ve heard from others about doctors not listening or helping is shocking!  I wrote previously about My Chronic Illness and GP’s  Where I spoke about the lack of support I was receiving by my doctor.  Shortly after writing that piece I moved practice and found a doctor who I felt got my condition and was helpful.  That is until one day, they don’t seem to be as understanding as you first thought.  They make you feel like you’re wasting their time.   You question whether you will go to see another doctor again.  My Latest Doctor Appointment Recently […]

The Changing Seasons – A Chronic Illness Survival Guide

The weather this summer has been glorious but it has been far too hot for some people, myself included.  Thankfully we are coming to the end of season.   I wanted to share some of the things I’ve learned this year to help cope the heat and chronic illness.  As well as sharing tips on dealing with the upcoming changes in seasons. What This Summer Taught Me Hot weather and fibromyalgia don’t make the best of friends.  They get on fine but don’t expect them to be talking after a few months of intense heat. The heat can cause symptoms to flare  During the heatwave that gripped the UK in July I learned a lot about how to cope with […]

This Flare Was Inevitable

With everything that has been going on lately, it’s no surprise that I am smack bang in the middle of a fibromyalgia flare. The stresses of being flooded, temporarily moving out and dealing with an overzealous climbing toddler has taken its toll. If you’re not sure what I’m talking about check out my last post for a life update. Over the past month or so I’ve been pushing myself to the limit everyday. I might not have been busting myself with chores or going for walks but stress uses up energy and when your energy levels aren’t that high to begin with, you can feel drained very quickly. Living at my parents was good for both me and Alex as […]

Why Fibromyalgia Awareness Day Is Important.

Today 12th May marks Fibromyalgia Awareness Day, a date that has been used for several years to help raise awareness to the condition that an estimated 800.000 people in the UK live with. It’s important that we talk, post and share about fibromyalgia as we need more and more people to know about this condition. A condition that some medical practitioners don’t believe in. A condition that can cause excruciating pain and debilitating fatigue. A condition that so many people battle against daily. It may not be life threatening but it is still a battle so many suffer alone and sometimes in silence because it is completely invisible and society seems to ignore anything that doesn’t have a flashing neon […]

When Chronic Illness & Mental Illness Gang Up On You

If you’ve been around these parts for a while you’ll know that I suffer from both chronic illness and mental illness. Although you wouldn’t be wrong to think that my mental illnesses of depression and anxiety are part in parcel with the chronic illness, you’d be both right and wrong. Although I’ve been plagued with depression most of my adult life, being diagnosed with chronic illnesses has made living with depression a little more difficult. It’s hard not to let the symptoms of my illnesses gang up on me and make me feel worthless and a terrible mother. A while ago I posted about my struggles with chronic illness and mental illness on my Instagram feed. It was a particularly […]

You Behind The Illness (Tag)

I’ve spoken in the past about my chronic illness, touching on how it has changed my life for almost a decade (Has it really been that long?)  Although sometimes I don’t feel like myself anymore, deep down I am still the same person I was back then. Yes there may be homes when I feel defeated, and seem close to giving up on my hopes and dreams. Those dreams however are still there lingering in the background.  When Natalie of Surviving Lifes Hurdles tagged me in the You Behind The Illness tag, I was excited to take part in the challenge and let people know the, me that’s been hiding behind my illness for so long.  Be sure to check out Natalie’s […]