How Chronic Illness Has Changed Me & Why I’m Ok With It, Kind Of

Finding out i had a chronic illness, was a huge adjustment to me. My life changed almost overnight. I went from a fun loving girl who enjoyed nights out with friends, days out into the city with David to a hermit like version of myself who wouldn’t go on day trips because I didn’t know how long it would take me to get sore and tired and want to come. I stopped going out with friends for similar reasons. It has taken some time to come to terms with my life changing because of illness and I’m okay with it, kind of. Pre Chronic Illness When I think back on my life pre chronic illness it was a lot different […]

When My Illness Affects Alex

Having lived with fibromyalgia for several years I am used to the disappointment that comes when I’ve made plans and have to cancel because I’m either too exhausted, too sore or have concentration issues. What I am not used to is the way it affects Alex’s life. His activities and chances to meet and play with other kids his age. Take today for example we go to gymnastics on Wednesday mornings Alex gets to spend time with his big cousin, play on the spring floor, the apparatus and the trampoline. But because I am in so much pain and can barely walk without resembling The Hunchback of Norte Dame. I’m unable to take him AND that makes me feel like […]

Positive GP Appointment 

For many people the thought of a GP appointment fills them with dread and anxiety, the fear that they will be judged for their weight or lifestyle choices, prevents many from seeking help from a GP when they are unwell.  I speak from experience.  Until very recently I had never had a positive GP appointment, I always left feeling that I had wasted their time ad resources, that they never really listened to what I was saying, that they were more interested in seeing patients as quickly as possible and getting them out the door.  I have previously written about GPs & Chronic Illness which you can check out here The practice that I was registered with only had 2 […]

Chronic Illness 101 – But You Don’t Look Sick 

The old cliche of never judging a book by its cover springs to mind when talking about chronic illness. Many people I know who suffer from a chronic illness don’t show signs of being ill, they still look like themselves. Which is the reason many of us have heard the comment “but you don’t look sick!” How exactly are we supposed to look? Should we be covered in sores and oozing puss? Should we be grey in colour? Should we have an appendage falling off? Or perhaps having a flashing neon sign that tells you what illness it is we are suffering from??  This and “if you get out or exercise, you’ll feel better” are a few of the most […]

Fat Girl Walks Into A Gym

It sounds like the start of a joke but it’s not!  I am said fat girl and yesterday I walked into a gym for the first time. (Technically the second but the last one doesn’t count as I didn’t use any of the equipment.) And it wasn’t as nearly as intimidating as I thought it could possibly be.  I was encouraged by my GP to join a gym under a scheme called Active Forth which is run by Falkirk Community Trust. The scheme helps people with many conditions such as fibromyalgia, arthritis, CFS, anxiety and depression to become more active in the hopes that the activity and exercise will help improve the patient’s conditions. The doctor also kept harping on […]

Chronic Illness 101 – Be Understanding

Dealing with chronic illness isn’t just about medicating and learning to cope with the symptoms that particular illness brings with it, it is also about how their entire life is affected by it.  Such as not being able to plan outings or meeting with friends  too far in advance because they don’t know what their energy level is going to be like that day. Or having to cancel on friends because their symptoms are flaring or they are too exhausted to leave the house. How do you as a friend of someone who is chronically ill deal with this? Simply put Be Understanding! I briefly covered this in my Chronic Illness 101 – The Basics post, and I feel that it […]