Why Fibromyalgia Awareness Day Is Important.

Today 12th May marks Fibromyalgia Awareness Day, a date that has been used for several years to help raise awareness to the condition that an estimated 800.000 people in the UK live with. It’s important that we talk, post and share about fibromyalgia as we need more and more people to know about this condition. A condition that some medical practitioners don’t believe in. A condition that can cause excruciating pain and debilitating fatigue. A condition that so many people battle against daily. It may not be life threatening but it is still a battle so many suffer alone and sometimes in silence because it is completely invisible and society seems to ignore anything that doesn’t have a flashing neon […]

How Chronic Illness Has Changed Me & Why I’m Ok With It, Kind Of

Finding out i had a chronic illness, was a huge adjustment to me. My life changed almost overnight. I went from a fun loving girl who enjoyed nights out with friends, days out into the city with David to a hermit like version of myself who wouldn’t go on day trips because I didn’t know how long it would take me to get sore and tired and want to come. I stopped going out with friends for similar reasons. It has taken some time to come to terms with my life changing because of illness and I’m okay with it, kind of. Pre Chronic Illness When I think back on my life pre chronic illness it was a lot different […]

When My Illness Affects Alex

Having lived with fibromyalgia for several years I am used to the disappointment that comes when I’ve made plans and have to cancel because I’m either too exhausted, too sore or have concentration issues. What I am not used to is the way it affects Alex’s life. His activities and chances to meet and play with other kids his age. Take today for example we go to gymnastics on Wednesday mornings Alex gets to spend time with his big cousin, play on the spring floor, the apparatus and the trampoline. But because I am in so much pain and can barely walk without resembling The Hunchback of Norte Dame. I’m unable to take him AND that makes me feel like […]

Positive GP Appointment 

For many people the thought of a GP appointment fills them with dread and anxiety, the fear that they will be judged for their weight or lifestyle choices, prevents many from seeking help from a GP when they are unwell.  I speak from experience.  Until very recently I had never had a positive GP appointment, I always left feeling that I had wasted their time ad resources, that they never really listened to what I was saying, that they were more interested in seeing patients as quickly as possible and getting them out the door.  I have previously written about GPs & Chronic Illness which you can check out here The practice that I was registered with only had 2 […]

Chronic Illness 101 – But You Don’t Look Sick 

The old cliche of never judging a book by its cover springs to mind when talking about chronic illness. Many people I know who suffer from a chronic illness don’t show signs of being ill, they still look like themselves. Which is the reason many of us have heard the comment “but you don’t look sick!” How exactly are we supposed to look? Should we be covered in sores and oozing puss? Should we be grey in colour? Should we have an appendage falling off? Or perhaps having a flashing neon sign that tells you what illness it is we are suffering from??  This and “if you get out or exercise, you’ll feel better” are a few of the most […]

My Chronic Illness And GPs

“The cruelest symptoms of our illness, is disbelief by medical personnel”. This quote by Mary Carlson is a perfect explanation of my own feelings with my illness and doctors. Ever since I started developing symptoms of my chronic illness I’ve had the feeling that many doctors didn’t believe me, leaving me to feel that what I was experiencing was all in my bed. I literally had to beg to be referred to a consultant twice and it was the second referral that finally for my diagnosis. Fast forward 4 years a confirmed diagnosis of fibromyalgia and hyper mobility syndrome and I am still made to feel like I am wasting GP’s time whenever I have appointments. Whenever I go into […]

Where My Heads At – Life Update 

All week I’ve been trying to write this post about how my latest fibromyalgia flare has affected me mentally.  But I keep stumbling with getting the words out!  Every time I sit down to write my mind goes blank, maybe I’m preoccupied with other issues that are going on at the moment, or maybe I’m not ready to talk about my mental health during a flare. Its hard to remain positive when your experiencing pain and exhaustion that can only be described as excruciating, where nothing takes the edge off, you cannot get out of bed unaided and cannot care for your child.  Your begin to feel completely useless and isolated. This is exactly how I’ve been feeling, this flare has […]

Bus Drivers!!!

Dearest First Bus drivers’ (yes plural)  I am a bus pass holder for visual impairment and have a toddler in a pushchair and I just want to take the time to say thank you.  Thank you for waiting until I was seated before pulling away. Making sure that my pushchair was securely braked and I didn’t bump into the pole meaning I wouldn’t end up with a bruise and sore arm thanks to my chronic condition fibromyalgia…………………..oh wait. That didn’t happen, did it?  No you both were complete wankers and pulled away before I was sitting down. I struggled to get my sons pushchair brake on before you drove away from the stop. And did bang my arm on the […]