Shining The Spotlight On Chronic Illness & Disability Q&A with Anonymous

Hello and welcome to another instalment of my Shining The Spotlight series.  Today’s Q&A is with one of my friends who wishes to remain anonymous.  This is her story. Introduce yourself and tell us a bit about you?  I am a 35 year old female homemaker with a ten year old, loving partner and dogs.  Chronic illness(es)/disabilities I have? I have Crohns disease which at first doctors thought was coeliac disease. I have problems with joints swelling which they think is  rheumatoid arthritis. I also have anxiety issues. My symptoms/condition began?  I was ill after a holiday to Majorca in 2004. I had really bad food poisoning and never got better. Running to the toilet, losing weight, constant stomach pain. […]

Shining The Spotlight on Chronic Illness & Disability Q&A With Jenny

Hello and welcome to the second instalment of Shining The Spotlight on Chronic Illness & Disability.  A series of posts where guest bloggers answer questions about their illness or disability.  In the hope that we can shine a light on these illnesses and disabilities to raise awareness and let people see that because they are mostly invisible illnesses & disabilities, that they are in fact real. Today’s Q&A is from Jenny.  Jenny blogs over at Tripping Through Treacle.   Introduce yourself and tell us a bit about you?   Hi!  I’m Jenny and am 40 years old.  I am married with two kids, a boy and a girl and live in the East of England.  Until recently, I worked as […]

Shining The Spotlight on Chronic Illness & Disability Q&A With Ashley

Following on from the guest post by the lovely Pamela. I was inspired to shine the spotlight on as many illnesses and spoonies as I can. I want to keep the conversation of chronic illness and disability going and for everyone to get their story heard. I compiled a list of questions that I thought would give people the chance to talk about their illness/disability and how their life is affected by it. Three people might all have fibromyalgia for example but all three of them might have a different list of symptoms and deal with it differently. The first of this Shining A Spotlight On Chronic Illness Series is brought to you by Ashley. I’ll stop rambling on and […]

The Changing Seasons – A Chronic Illness Survival Guide

The weather this summer has been glorious but it has been far too hot for some people, myself included.  Thankfully we are coming to the end of season.   I wanted to share some of the things I’ve learned this year to help cope the heat and chronic illness.  As well as sharing tips on dealing with the upcoming changes in seasons. What This Summer Taught Me Hot weather and fibromyalgia don’t make the best of friends.  They get on fine but don’t expect them to be talking after a few months of intense heat. The heat can cause symptoms to flare  During the heatwave that gripped the UK in July I learned a lot about how to cope with […]

This Flare Was Inevitable

With everything that has been going on lately, it’s no surprise that I am smack bang in the middle of a fibromyalgia flare. The stresses of being flooded, temporarily moving out and dealing with an overzealous climbing toddler has taken its toll. If you’re not sure what I’m talking about check out my last post for a life update. Over the past month or so I’ve been pushing myself to the limit everyday. I might not have been busting myself with chores or going for walks but stress uses up energy and when your energy levels aren’t that high to begin with, you can feel drained very quickly. Living at my parents was good for both me and Alex as […]

Why Fibromyalgia Awareness Day Is Important.

Today 12th May marks Fibromyalgia Awareness Day, a date that has been used for several years to help raise awareness to the condition that an estimated 800.000 people in the UK live with. It’s important that we talk, post and share about fibromyalgia as we need more and more people to know about this condition. A condition that some medical practitioners don’t believe in. A condition that can cause excruciating pain and debilitating fatigue. A condition that so many people battle against daily. It may not be life threatening but it is still a battle so many suffer alone and sometimes in silence because it is completely invisible and society seems to ignore anything that doesn’t have a flashing neon […]

When Chronic Illness & Mental Illness Gang Up On You

If you’ve been around these parts for a while you’ll know that I suffer from both chronic illness and mental illness. Although you wouldn’t be wrong to think that my mental illnesses of depression and anxiety are part in parcel with the chronic illness, you’d be both right and wrong. Although I’ve been plagued with depression most of my adult life, being diagnosed with chronic illnesses has made living with depression a little more difficult. It’s hard not to let the symptoms of my illnesses gang up on me and make me feel worthless and a terrible mother. A while ago I posted about my struggles with chronic illness and mental illness on my Instagram feed. It was a particularly […]

How Chronic Illness Has Changed Me & Why I’m Ok With It, Kind Of

Finding out i had a chronic illness, was a huge adjustment to me. My life changed almost overnight. I went from a fun loving girl who enjoyed nights out with friends, days out into the city with David to a hermit like version of myself who wouldn’t go on day trips because I didn’t know how long it would take me to get sore and tired and want to come. I stopped going out with friends for similar reasons. It has taken some time to come to terms with my life changing because of illness and I’m okay with it, kind of. Pre Chronic Illness When I think back on my life pre chronic illness it was a lot different […]

When My Illness Affects Alex

Having lived with fibromyalgia for several years I am used to the disappointment that comes when I’ve made plans and have to cancel because I’m either too exhausted, too sore or have concentration issues. What I am not used to is the way it affects Alex’s life. His activities and chances to meet and play with other kids his age. Take today for example we go to gymnastics on Wednesday mornings Alex gets to spend time with his big cousin, play on the spring floor, the apparatus and the trampoline. But because I am in so much pain and can barely walk without resembling The Hunchback of Norte Dame. I’m unable to take him AND that makes me feel like […]

Costochondritis – How It Really Feels. 

If you're an avid reader of this site, it is no secret that I have a few chronic conditions that have plagued me for several years.  I have spoken several times about my various illnesses which you can read about in My Chronic Illness & My Story.  When I mention one illness in particular many people have never heard of it, they don't know what costochondritis is or what it really feels like when you are experiencing what can only be described as a debilitating pain that feels like you could possibly be having a heart attack. What is costochondritis?  Basically put it is an inflammation in the wall of your chest where the ribs connect to the breast bone resulting […]