When My Illness Affects Alex

Having lived with fibromyalgia for several years I am used to the disappointment that comes when I’ve made plans and have to cancel because I’m either too exhausted, too sore or have concentration issues. What I am not used to is the way it affects Alex’s life. His activities and chances to meet and play with other kids his age. Take today for example we go to gymnastics on Wednesday mornings Alex gets to spend time with his big cousin, play on the spring floor, the apparatus and the trampoline. But because I am in so much pain and can barely walk without resembling The Hunchback of Norte Dame. I’m unable to take him AND that makes me feel like […]

My Chronic Illness And GPs

“The cruelest symptoms of our illness, is disbelief by medical personnel”. This quote by Mary Carlson is a perfect explanation of my own feelings with my illness and doctors. Ever since I started developing symptoms of my chronic illness I’ve had the feeling that many doctors didn’t believe me, leaving me to feel that what I was experiencing was all in my bed. I literally had to beg to be referred to a consultant twice and it was the second referral that finally for my diagnosis. Fast forward 4 years a confirmed diagnosis of fibromyalgia and hyper mobility syndrome and I am still made to feel like I am wasting GP’s time whenever I have appointments. Whenever I go into […]